Last weekend I ‘developed’ a new issue. Last Saturday morning my left arm started getting a pins and needles sensation and whenever I lifted my arm higher than stomach level, it felt like it was on fire. I have since, been unable to grasp anything in my hand.
At first I thought it might have something to do with my steroid shots (both shots were in my left arm). I mentioned this to my doctor, who seemed to agree with me. That is, until I called his office still complaining about the loss of sensation (well, except for the horrible pins and needles and burning).
So today I had my ‘normal’ labwork done as well as an NCV (carpal tunnel test) and an EMG.
First, the good news, that well, isnt all that good…..My WBC went down 10000. My doctors expected it to drop more, but I still have another week until my next treatment (that is, if I still decide to get it).
I know I dont have carpal tunnel. I guess that is good news…..sorta
What I WAS told is that I have multiple mononeuropathy. This is nerve damage to a nerve group.
The doctor said Mononeuropathy may be disabling and painful. If the cause of the nerve dysfunction can be found and successfully treated, there is a possibility of full recovery. The extent of disability varies from no disability to partial or complete loss of movement or sensation. Nerve pain may be quite uncomfortable and may last for a long time.
Uh, ya think?
What they dont know for sure is if the immonu-suppressent caused this to occur or if my lupus caused this to occur. Both of these are factors.
The scariest part is knowing that lupus (SLE) can attack any part of my body, and is now making time in yet another part.