I know its been awhile since Ive blogged….its been very rough.

Right before Christmas I became ill. It was just a cold. Unfortunately for those of us with lupus and fibromyalgia simple colds can turn into a multitude of issues. And that is what occurred.

Some of you may know the other health issues I face along with the SLE and FM. If you arent aware, I also have been diagnosed with COPD and IgaN. Both of those are serious enough issues by themselves  but coupled with the auto immune factor….well, lets just say Im on a very tight leash with my team of physicians. There are other health issues that havent had an official diagnoses yet, so as of now just the symptoms are the issue.

My doctors have told me that I will probably never work again.

What does this mean?

Well, other than the fact that we have no disposable income whatsoever, it also means that we cant pay our bills on a single salary.

So, we are doing a significant downsize here.

Our house will be either sold or short saled. My vehicle is gone because Im not allowed to drive any longer. And we move to a much smaller and affordable place with ONE floor because climbing up and down stairs is not helping me with mobility.

And while this does help in the long run, we face the hurdle of relocating on no money. And that is why I am asking for help.

Many of my friends have told me to attempt to ask for help online. I have started that process and have asked some of my friends to help. (For those that have helped, I truly thank you)

However, in the midst of this, Ive been made aware of some insane stories about people raising money online. One of which is some bloggers on what people refer to as FTB. There are 3 bloggers raising funds now. One had a hysterectomy and in the process bought designer shoes and blogged about it. The other had their laptop break and are raising money to purchase another. From what Ive seen of what theyve done, theyve been successful. Ive heard that another FTB blogger is actually homeless (Im not that desperate……yet) but it seems like her plight isnt being taken seriously enough. Those things make me mad. The REAL person needing help there isnt getting it.

Theres another blogger (a foodie, if Im not mistaken) who raised over $170,000 so she can travel to kitchens and blog. (Her online name is Harto) Im not sure what type of people donate money to a food blogger, or even the types of people that think that is a worthy cause, but it seems to me that these reasons are not dire.

Granted, I dont need that kind of money….and Im not asking for that. But it makes me mad to see the types of things people donate to things that literally dont matter. 

But Ive gone a little off topic….

I need help. Financial help.

Ive applied to many human services programs but they refuse to help because I own the house Im moving out of and happen to co-exist with someone who makes more than $1000 a month. I dont even qualify for food stamps.

Ive been referred to a program called Catastrophic Health Planning. That way I can get SOME type of support for the emotional aspect of changing my life with all these new limitations, but that still doesnt help us buy groceries or gas so I can get to doctor appointments.

Which brings me to my plea for help. Im sharing a link to my paypal where you can donate money. Just click on the link and enter my email address (sheilafaulstichATgmailDOTcom) Yes, I spelled that out so I wont get spammed. [LINK: https://www.paypal.com/webapps/mpp/send-money-online ]

Any amount will help us get thru this tough time. Thank you in advance.

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Consider me one of those people who have to learn things the VERY hard way. Its official. I am a doofus. Yea, that might sound a little harsh….but its the truth. I spent the majority of my life thinking I could do what I wanted, not listening to the doctors, and be completely fine.

Sure, it didnt start out like that….When I was first diagnosed with lupus in 95, I listened to what they told me to do. I changed my diet, changed my lifestyle, etc. But as I got better and went into remission, I fell back on those old habits.

Since the initial remission, Ive had several additional flares and subsequent remissions. And, while I would like to say that I changed what I had to each time, that would not be the truth.

I actually went a full homeopathic route until this last flare. I am VERY VERY VERY lucky to not have killed myself not getting the correct treatment. And to be honest, I could have actually lost my kidney.

I am still kicking myself for that stupidity.

Ive been in this most recent flare since November. Yes, November.

My current treatment has been at a standstill due to other health issues that have arisen….which, I could just kick myself for, since that is also connected with my unwillingness to do what Im supposed to be doing.

Since my last post, Ive been on rescue inhalers, inhaled steroids, nasal steroids, oral steroids, and antibiotics.

I am not getting better.

I still do not have my voice.

I still have issues catching my breath doing the most trivial of tasks

With one exception, this entire experience is MY FAULT.

And now, Im faced with the fact that my voice will never recover. I may get some vocal range back with intense speech/vocal therapy, but I will never have MY voice again.

My lungs may never recover. With some of the changes Im making NOW, I might get SOME of my lung function back…..SOME.

I am extremely mad at myself because I could have prevented these issues by making REAL lifestyle changes.

And, in case you were wondering just what it is Im going thru…..the diagnoses is two fold. My lupus has attacked my pulmonary system and due to the other factors mentioned above, I now am also diagnosed with emphysema and COPD.

This effectively means that I have NO choice now but to make lifestyle changes.

This is not the way it should have went down. If you are reading this and not watching what you eat and are a smoker (even an occasional smoker), MAKE THE CHANGES NOW!  Do NOT wait til you get THIS sick.